The NIH Big Data to Knowledge (BD2K) initiative, J Am Med Inform Assoc J, vol.22, issue.6, p.1114, 2015. ,
, OHDSI -Observational Health Data Sciences and Informatics, p.5, 2019.
Observational Health Data Sciences and Informatics (OHDSI): Opportunities for Observational Researchers. Stud Health Technol, Inform, vol.216, pp.574-582, 2015. ,
PCORnet: turning a dream into reality, J Am Med Inform Assoc, vol.21, issue.4, pp.576-583, 2014. ,
Engaging Patients in Information Sharing and Data Collection: The Role of Patient-Powered Registries and Research Networks, Agency for Healthcare Research and Quality (US), 2013. ,
et al; eMERGE Network. The Electronic Medical Records and Genomics (eMERGE) Network: past, present, and future, Genet Med, vol.15, issue.10, pp.761-71, 2013. ,
The eMERGE Network: A consortium of biorepositories linked to electronic medical records data for conducting genomic studies, BMC Med Genomics, vol.4, p.13, 2011. ,
Big data and medical research in China, BMJ, vol.360, p.5910, 2018. ,
The Need for Research Infrastructures: A Narrative Review of Large-Scale Research Infrastructures in Biobanking, Biopreserv Biobank, vol.15, issue.4, pp.375-83, 2017. ,
Integrating Biobank Data into a Clinical Data Research Network: The IBCB Project, Stud Health Technol Inform, vol.247, pp.16-20, 2018. ,
URL : https://hal.archives-ouvertes.fr/hal-01808770
Toward Global Biobank Integration by Implementation of the Minimum Information About BIobank Data Sharing (MIABIS 2.0 Core), Biopreserv Biobank, vol.14, issue.4, pp.298-306, 2016. ,
Using electronic health records for clinical research: the case of the EHR4CR project, J Biomed Inform, vol.53, pp.162-73, 2015. ,
URL : https://hal.archives-ouvertes.fr/hal-01147042
Jonassen I. The ELIXIR channel in F1000Research, F1000Research, vol.4, 2015. ,
, , p.5, 2019.
, About the initiative | Medical Informatics Initiative, p.5, 2019.
, Medical Informatics Initiative. Methods Inf Med, vol.57, pp.50-56, 2018.
Medical Informatics in Research and Care in University Medicine, Methods Inf Med, vol.57, pp.82-91, 2018. ,
HiGHmed -An Open Platform Approach to Enhance Care and Research across Institutional Boundaries, Methods Inf Med, vol.57, pp.66-81, 2018. ,
Smart Medical Information Technology for Healthcare (SMITH), Methods Inf Med, vol.57, pp.92-105, 2018. ,
Data Integration for Future Medicine (DIFUTURE), Methods Inf Med, vol.57, pp.57-65, 2018. ,
, , p.5, 2019.
, Discours du Président de la République sur l'intelligence artificielle [Speech by the President of the French Republic on artificial intelligence]. elysee. fr, p.5, 2019.
Value of a national administrative database to guide public decisions: From the système national d'information interrégimes de l'Assurance Maladie (SNIIRAM) to the système national des données de santé (SNDS) in France, Rev Epidemiol Sante Publique, vol.65, issue.4, pp.149-167, 2017. ,
The national healthcare system claims databases in France, SNIIRAM and EGB: Powerful tools for pharmacoepidemiology. Pharmacoepidemiol Drug Saf, vol.26, pp.954-62, 2017. ,
, LOINC -The freely available standard for identifying health measurements, observations, and documents, p.5, 2019.
The openEHR Foundation, Stud Health Technol Inform, vol.115, pp.153-73, 2005. ,
, CTS2TM) | Object Management Group, Common Terminology Services, vol.2, p.5, 2019.
,
Serving the enterprise and beyond with informatics for integrating biology and the bedside (i2b2), J Am Med Inform Assoc, vol.17, issue.2, pp.124-154, 2010. ,
tranSMART: An Open Source and Community-Driven Informatics and Data Sharing Platform for Clinical and Translational Research, AMIA Jt Summits Transl Sci Proc, vol.2013, pp.6-8, 2013. ,
FAIR Data Points Supporting Big Data Interoperability. Enterprise Interoperability in the Digitized and Networked Factory of the Future. London: ISTE, pp.270-279, 2016. ,
Electronic laboratory data quality and the value of a health information exchange to support public health reporting processes, AMIA Annu Symp Proc, vol.2011, pp.322-352, 2011. ,
Improving Quality of Electronic Health Records with SNOMED, Procedia Technol, vol.16, pp.1342-50, 2014. ,
Initializing a hospital-wide data quality program. The AP-HP experience, Comput Methods Programs Biomed, 2009. ,
The impact of electronic health record (EHR) interoperability on immunization information system (IIS) data quality, Online J Public Health Inform, vol.8, issue.2, p.184, 2016. ,
The long road to semantic interoperability in support of public health: Experiences from two states, J Biomed Inform, vol.49, pp.3-8, 2014. ,
, Systèmes d'information de santé : le diagnostic est posé, le traitement s'impose [Health information systems: the diagnosis is made, p.5, 2019.
, Information de Santé [Framework for Interoperability of Health Information Systems, 2019.
Literature review of SNOMED CT use, J Am Med Inform Assoc, vol.21, issue.e1, pp.11-19, 2014. ,
Adoption of a Nationwide Shared Medical Record in France: Lessons Learnt after 5 Years of Deployment AMIA, Annu Symp Proc, vol.2016, pp.1100-1109, 2017. ,
Ministère des Solidarités et de la Santé [Ministry of Solidarities and Health. Territory Hospital networks. Ministry of Solidarity and Health, p.5, 2019. ,
, Mise en place d'un entrepôt de données de santé et de son cadre d'utilisation [Deployement of a health data warehouse and its framework of uses
, Available: /contenu/mise-en-place-dunentrepot-de-donnees-de-sante-et-de-son-cadredutilisation, p.5, 2019.
Initializing a hospital-wide data quality program. The AP-HP experience, Comput Methods Programs Biomed, 2009. ,
The ConSoRe project supports the implementation of big data in oncology, Bull Cancer, vol.103, issue.11, pp.949-50, 2016. ,
eHOP Clinical Data Warehouse : from a prototype to the creation of an inter-regional clinical data centers network, 2019. ,
URL : https://hal.archives-ouvertes.fr/hal-02280251
MOSAIC--A Modular Approach to Data Management in Epidemiological Studies, Methods Inf Med, vol.54, issue.4, pp.364-71, 2015. ,
, Arrêté du 5 mai 2017 portant nomination au Comité d'expertise pour les recherches, les études et les évaluations dans le domaine de la santé
, , 2019.
, Oxford Dictionaries | English, subsidiarity | Definition of subsidiarity in English by Oxford Dictionaries, p.5, 2019.
, Swiss Personalized Health Network (SPHN) named a 2019 GA4GH Driver Project
, the-future-of-healthcare-ourvision-for-digital-data-and-technology-in-healthand-care/the-future-of-healthcare-our-vision-fordigital-data-and-technology-in-health-and-care, p.5, 2019.
, Code of conduct for data-driven health and care technology. GOV.UK, p.5, 2019.
, Le Réseau santé wallon devient l'interface d'un portail de traitement des données médicales [The Walloon Health Network becomes the interface of a medical data processing portal, vol.19, p.5, 2018.
The European Institute for Innovation through Health Data, Learn Health Syst, vol.1, issue.1, p.10008, 2017. ,
Natural language processing systems for capturing and standardizing unstructured clinical information: A systematic review, J Biomed Inform, vol.73, pp.14-29, 2017. ,
, PARS3 : Plateforme apprenante pour la recherche en santé et services sociaux au Québec [PARS3 : Learning platform for research in health and social services in Quebec
, GRIIS, p.5, 2019.
, , p.5, 2019.
, International comparison of digital strategies, p.60